A pioneering programme that empowers stroke survivors to become more involved in their own rehabilitation has been officially launched as a social enterprise.
Bridges Self-Management is the culmination of an eight-year project led by rehabilitation expert Dr Fiona Jones from the Faculty of Health, Social Care and Education at London's Kingston University and St George's, University of London.
Dr Jones has spearheaded the development of the programme to help stroke survivors back on the road to greater confidence and independence. It has already been adopted by healthcare providers across the UK and has even been rolled out as far afield as New Zealand.
The spin-off company, established with support from business development experts based in Kingston University's Enterprise Department, aims to increase Bridges' reach and impact so greater numbers of people can benefit from the training and tools offered. It was formed after securing funding from Britain's leading provider of social enterprise support, UnLtd, and attracting external investment.
With an estimated 150,000 people in the UK experiencing a stroke each year and many survivors living with disabilities as a result, the condition placed enormous pressure on the healthcare system, Dr Jones said. "Self-management can be an effective way of helping people once they are discharged from hospital, while also reducing some of the burden on the limited resources available for rehabilitation services," she added.
"Bridges not only supports survivors dealing with the challenges of everyday life but also addresses their confidence and long-term needs - frequently identified as unmet by people affected by stroke and their carers."
As well as helping patients to manage the physical challenges they face, the programme encourages them to set personal targets and lets them take charge of their rehabilitation moving forward. The initiative had the potential to help greater numbers of stroke survivors realise their own resourcefulness so they could be less reliant on medical and rehabilitation support when they returned home, Dr Jones said.
The programme consists of three main components - workshops providing in-depth training for health professionals; one-to-one sessions where individual patients learn how to develop their self-management skills; and a workbook enabling stroke survivors to set personal targets, chart their achievements and draw inspiration from others who have confronted similar challenges.
Traditionally, much of the resource for stroke rehabilitation had been geared towards helping patients through the initial phases of their recovery and dealing with immediate barriers to independence, Dr Jones said.
"Generally, there has been less emphasis on the psychological well-being of patients and their future needs," she explained. "This can lead to stroke survivors feeling abandoned and ill-prepared for coping with everyday life once they are discharged from regular therapy."
Dr Jones, who has more than 25 years' experience working as a physiotherapist specialising in neuro-rehabilitation, first formalised her ideas in 2005, through a scheme at that time known as Stepping Out. The training element of Bridges has been running since 2010 and Dr Jones has now delivered almost 60 workshops for stroke teams throughout the United Kingdom.
"Research shows that self-management fails where healthcare professionals don't have the knowledge or experience to advocate that model of care, so Bridges teaches these specialists to share decision making and to support patients to play an active part in their rehabilitation," she said.